Standing Tall

“Strength”by Anne Copeland

Life doesn’t always give us strength when we need it most. We may be ill ourselves and still have to take care of our significant other. Or perhaps we have to deal with legal issues that we are ill equipped financially or otherwise to deal with. Or a child has run away, or gone missing. There are as many things as we have to deal with as we could come up with, sometimes multiple issues at the same time.

When my significant other came home from a major cervical surgery, I was ill and had been for months with chronic bronchitis. He was not ready to be released without some form of nursing care or rehab; he could not lift his own body up from bed as his right arm was paralyzed, and he could not cut up his own food to prevent choking, or to even bathe himself or use the bathroom by himself. I am sure there are others who have been in the same situation with loved ones.

Each day I dragged myself out of bed, and did whatever was necessary to help him. During this time, I also had to get him to multiple medical appointments and back to the spinal clinic in another town about an hour away. As we were about to enter the clinic one day, I suddenly remember the lights going out and falling on my face in the dirt. Luckily some good folks came and helped me back up; my significant other could not possibly help me and he was clearly upset and terrified. My nose still feels as though it was broken and I hit my head pretty hard, and hurt my knees as well. Other than going to emergency and waiting for perhaps 10 – 12 hours, I chose to just try to make the best of it all. I cannot leave my significant other at this time.

The fault is not that of his doctors or mine. It is the Medicare and MediCal insurance that is not giving us what we need. When I had a bad infection, even though the medication was prescribed by a specialist, I could not get it for two weeks because the Pharmaceutical Department of the insurance had to approve it as it was not covered. In my younger years, I was a Regulatory Compliance Specialist for a major pharmaceutical company that made plasma derivative products, so I guess I know a little bit about that issue. During the two weeks that I was ill, the infection got worse, resulting in my still being ill after a couple of months. I file grievances on both issues, and I will follow through on it even though I am still having a difficult time as is my significant other.

The point is not to tell my own story for others to feel sorry for me. The point is that sometimes we have to stand tall when we are feeling weak. We need to remember that even though it is not easy, we have to stand up for our rights, and for those of others. No one said this life would be a bowl of cherries; there are challenges every single day of one type or another. And we don’t need to lose our love of life and the world. We need to remember that when we have our worst challenges, there are always others who are far worse off. Try to help someone else who is worse off than you are, at least giving them words of hope if nothing else. And try to stay strong in the face of many barriers to everyday life. Remember that no challenge lasts forever. STRENGTH is our friend.

THE 70273 PROJECT with a side of Jeanne Hewell-Chambers

Nancy and Jean Hewell-Chambers

Nancy is a special needs lady who is 64 now and she and Jean are very special friends of mine who attracted my attention when my friend Barbara Williamson and I had our tiny nonprofit to assist physically challenged fiber artists. Although Jean is not physically/developmentally or emotionally challenged, I was touched by how she was taking Nancy’s scribblings and turning them into fiber arts pieces which were exhibited at various museums and sold to raise money to contribute to Nancy’s needs.

Jean’s Fiber Arts Recreation of Nancy’s Attempts to Write courtesy of Pinterest.

Jean has always been an advocate/activist for the children and adults with special needs, and our friendship grew out of that shared advocacy/activism. The bigger story of Jean and her sister-in-law, Nancy, is in our book, Artful Alchemy: Physically Challenged Artists Creating, available from Amazon.com.

The 70273 Project has been her latest project to help bring awareness of the ways special needs people have been viewed over time.

“Between January 1940 and August 1941 under a program called Aktion T4, Nazis murdered 70,273 physically and mentally disabled people – men, women, teens, boys, and girls. Though they never even laid eyes on the disabled person they were evaluating, the Nazi doctors read the medical files and, if from the words on the page, the person was deemed “unfit” or an “economic burden on society”, the doctor placed a red X at the bottom of the form. Three doctors were to read each medical file, and when two of them made a red X on the page, the disabled person’s fate was sealed.

“I will commemorate these 70,273 voiceless, powerless people who were so callously and casually murdered by gathering 70,273 blocks of white fabric (representing the paper the doctors read), each bearing two red X’s (representing one person), and I will stitch them together into quilts. 

“I can’t change history – can’t unring that bell – but I can commemorate the lives of these 70,273 disabled people in this small way . . . if you’ll help. (I’ve done the math, and I just can’t do it alone.) This site, (Http://www.the70273project.org ) will take you to more information on how to get involved if that is in your heart.”

Thank you one and all most kindly.