This is who I am. I love to recycle things that have meant something to me. I found these shoes in a thrift store years ago. I fell in love with them because the shoe brand was something like Sam and Jane and they were about the most comfortable shoes I ever had with a soft sole and leather that seemed to breathe. The original shoes were brown, not gold. But one day as I went to get my shoes to go someplace, the sole of one was literally falling off of it. Of course I was heartbroken, but then I had this idea to make a play on words and to give one of the shoes a whole new life, so I came up with this idea.
The “wings” are on a base which is made from the sole of one shoe, and I found the most wonderful colored organiza with a nice stiffness to it that allowed me to cut out the little leaves. The leaves seemed appropriate to me because shoes wouldn’t tend to go up in the air (except for the kids who throw them over the telephone lines). And I remembered in the compass of my soul how much fun it was as a kid (and ok, I confess, as a grownup too) to jump in a pile of leaves). And I had to make her a happy and bright color full of life, for that is how I remembered those old comfy shoes.
It’s so many years later since I made her, “My Shoe’s Got Soul.” She’s still with me, and I imagine that she will still be when I take my last jump into those leaves. And it’s funny because she led me to write a story called “Tenshoes and the Skittyfoot” about ten orphan shoes who live in a trash dump, and every Saturday, the animals up in the meadow above hear “sootspeak” because the dump is putting out ugly smoke and it is mixed with the angry and sad words from the ten orphans arguing because they were just thrown away like they never mattered after living lives with adventure. They were never appreciated for who and what they were, and the dump is a horrible place to live.
The Skittyfoot is a little boy with red (really red) hair who comes to visit the creatures in the meadow every day, and the little boy can talk to them and they to him. They tell him about the Tenshoes, and that they want him to go and rescue the Tenshoes from the ugly dump and bring them up to the meadow where they can live safely. But before they can come up to the meadow, they have to find things and fix themselves up as best as they can. Just because they are orphans doesn’t mean they cannot have pride in themselves.
So the Skittyfoot goes down to the dump, and ultimately gets the tenshoes to clean and fix themselves up, and help each other, which they do. Ultimately they go to the meadow with the Skittyfoot, and the little creatures in the meadow all make them welcome and they will have a forever home where they are loved and treasured.
No, I never published Tenshoes and the Skittyfoot though I guess I could have. Some things just live on in our hearts and in the compass of our souls. I’ve been a sort of orphan too, and it took me awhile, for I didn’t have a Skittyfoot or other orphans like me to help, but I fixed myself up nice and clean (there is not and never has been anything related to drugs or other similar things but a transformation from being a childhood orphan), and now I can make things like “My Shoe’s Got Soul” to help others to feel good about themselves too.
Isn’t it strange how life brings little things into our consciousness to help us learn to grow and to care for ourselves, even if we were a kind of orphan in our younger lives? And using art to fix up an old shoe that brought happiness to a life can be a symbol of that. We don’t have to find fancy things or to do anything special to make it up to the meadow from the dump. The recognition of value in little things is what brings a true transformation to us in our lives. Your life, no matter how small you may think it is, is a miracle. Live it like the true gift it is.
Oh God, I come to you this day, my head bowed in sorrow. You created this magnificent world. And look what we have done to it and to you. Today, we celebrate Memorial Day to honor the soldiers who died fighting, each side with their own belief systems, somehow mistakenly believing that they were fighting for what was right. We fight each other believing that we are fighting for freedom, but as long as we continue to fight, we will never be free. When we think of the day of Memory, we need to remember not only soldiers who gave their lives, but for the millions of everyday citizens of countries who died, and especially the children, because the children are the future. The children are not old enough to understand the meaning of war. And yet they too lost their lives, or suffered physical and emotional damage that will follow them all the days ahead. You gave us this abundant world, God, with enough food and resources to feed each person on this earth, and yet so many are going without food or warmth, or thirsting because we have failed in our ability to nurture the world instead of fighting to gain control over it. Oh God, I pray to give us wisdom, and most of all, God, help us to learn compassion for all the others in this world and to see them as we see our own selves. We are all sacred because we are in you as you are in us. This I pray in your Memory.
It is just a little thing. I think it was 12″ w x 17″ l. It took very little time even with some hand-stitching. But that was not important at all. The whole idea was to try to bring a moment of happiness into someone’s life, especially when they have had a hard time and need some support.
These men were serving their country when they were wounded, and we need to go beyond our personal beliefs about war and whether we should have been there or not and try to help those men. My own brother came home 100% disabled from Vietnam. My brother knew nothing of Vietnam or its people and he knew even less about the politics involved. He went to serve his country as many of my relatives in the past have done; he was just 18, still a teenager. He is alive today after these many years, and it has given me the heart to help anyone who was or is suffering a physical/developmental/emotional or other challenge for the remainder of my life.
If we believe in something we are doing, we must do it and not forsake it just because there are challenges in trying to do it. The challenges of life are there to help us. Without them, we would never learn to have compassion for others, or to act when we see a need. And life’s journey would not be meaningful without them. Walking through a barren desert will never be comparable with walking through a life of valleys and mountains. And we could never learn personal strength in our beliefs -religious/spiritual without them.
Before you mistakenly think that I am a Jew, I am not. I believe that we are all sacred on this earth, and we were put here for a purpose, so we all belong here – be you Chinese, Mexican, Black, Indian (East or West), Muslim, or any other race of people or culture, regardless of what God or spiritual belief you follow, regardless of your political beliefs, or any of those other things we associate with human beings. We are ALL sacred, and none of us would be here if we were not meant to be, along with all the types of creatures and growing plants, right down to the smallest grain of sand. Our greatest challenge today is to accept all the people in this world as being essential for the survival of the world and the universe. Together, we can accomplish so much, but as long as we keep considering that any particular group, any creatures, any plant or grain of sand, we will be continuing to tear down what was given to us as the greatest gift.
Let us not be separated by barbed wires, by men and women with guns, or other instruments of torture. Let us look to see the beauty in all the individuals and the creatures, the plants, and the smallest grains of sand, and work together to help this universe to continue to live. Every time we harm another human being, be it physical or with our words, we harm our own selves because we lose more of our souls until there is nothing left to show that we were once human. Take a moment out of your day to say a prayer for all of the humans, the creatures, the plants and the grains of sand and how thankful we all are that we have been given this beautiful diversity. Thank you one and all.
There are several specific things that you can do in this life to help yourself heal from trauma or other things that happen to us in this life. 1) Pray about it, thanking your God or Spiritual Being for the experience. 2) Meditate about it, understanding that life’s challenges are important for us because without them, we could never learn compassion for others. We would also not have such a meaningful journey in life because it is the challenges that help us to appreciate the beauty that exists in the world. A life that is totally flat and without challenges is like living in a land without valleys and mountains. 3) Create, create, create. No matter how bad I might feel at any given time, creating is always something that gives me a true sense of magic, spirituality and gratitude for this life with which I have been gifted.
Creativity comes from the innermost part of our souls, whether we are dancing with joy or our eyes have cried forth many tears.
Life is so short, and I think one of the reasons we are here is to work on “getting it right.” That means that we come to terms with where we are, who we are, and what we choose to do with our lives. You can take whatever you do in this life, from being a cook in a fast food shop to being an airline pilot and everything in between. If you are a cook, know that you are doing it because you are comfortable with it, and become the best cook you can possibly be. If you are working as a cook and are not happy, what do you need to do in order to change that? It isn’t just a matter of going out and finding another job. You need to figure out who you are and what you really want to do in this life.
I’ve never been wealthy; far from it. I have worked hard all my life for a little. But the whole time I ever worked once I grew up was spent doing things I wanted to do, things I believed in most sincerely, which was about serving others in ways that might make a difference in their lives, and doing things that I loved so much that I looked forward to going to every day. Money was always secondary for me to providing services to others, especially anyone with physical, developmental, emotional or other challenges.
At the end of the Vietnam War, my younger brother returned 100% physically and mentally challenged. It gave me the heart to help others the rest of my life who have had any kind of challenges. I don’t regret a single second of my work with others. It has been as satisfying as watching one of my most gorgeous flowers come into bloom.
It has been a good journey. I am not saying it has not been a challenge, but isn’t anything worth doing a challenge? And you know, when we change, an interesting phenomena takes place. Other people do too. When this 22-year old car (as of 2018) was still in its original form, people treated me as if I should get out of their way and get off the road. The transformation was amazing. People on the freeways and roads gave me the peace sign or thumbs up or high fives. And when I stopped in a parking lot, people came up to me and wanted to take photos, and wanted to know the story of the car. And I made a LOT of friends over the years that way.
Make someone or a bunch of people happy today. Sometimes it can be as simple as smiling at them and saying “Hello,” or you could do a random act of kindness such as going into an old people’s home and taking a bouquet for the people who live there. Or you could thank a police person, fire person, nurse or doctor for doing what they do. True, it is what they have chosen to do, but many times they work when we are asleep or having a holiday, and they sometimes risk their own lives to do it. Creativity doesn’t have a specific face.
When I saw the photo of this beautiful and diminutive lady in the newspaper, I was inspired to create her likeness in a quilt which is still not finished. There is something about finishing it that reminds me of her life, for her goal is unfinished, and her country of Myanmar is still unfinished in the sense of gaining freedom for her people, so in a way it seems appropriate to be unfinished. I will finish it I am certain, but I have to make some adjustments to it in the direction she is facing and the overall size, etc. of the quilt. Giving it texture will enhance the quilt greatly just as giving texture to life enhances it as well.
I love people who make a commitment in life that they will pursue despite whatever challenges or dangers they face in the process. Called “The Father of Democracy” by the people of the country, her father was assassinated when Aung San Suu Kyi was just two years old. Despite such heart-breaking challenges, she steadfastly stuck by her beliefs even though she was under house arrest for years and has faced unbelievable circumstances. Her husband and two sons had to move outside the country. When her husband was stricken with cancer, she was told that she could go to be with him in his time of need, but that if she did, she could never come back. What a heart-rending decision had to be made and what incredible sacrifices the whole family made.
Yes, she is one of my heroes. No matter how much I might believe in something, I am not sure I could ever have given so much to such an immense cause.
It is good to have heroes in this life as I have noted before. We all need to know that when we are called to do something difficult, there are others who have made a path for us to follow. Perhaps those in her country who are against her are just waiting out the time when she too will pass on. Although she won the Nobel prize during the time she lived under house arrest not much has changed in Myanmar to this day.
If the time comes that I have to stand up and fight for a cause in my lifetime that I too will have the courage to stay strong and be brave until my last moments on this earth. I long for the all of earth’s people to learn to work together for our mutual benefit, and to realize and respect that we are all sacred and here on this earth by some great design.
My heart work is with special needs children which I did for some 15+ years. Sometime in the early 70’s or late 60’s my younger brother and only sibling came home from Vietnam 100% disabled with a TBI, a spinal injury, and permanent PTSD. It gave me that heart to work not only with the children, but with people with all forms of challenges – physical, developmental, and emotional. I have done that for the rest of my life to this day.
I was a Regulatory Compliance Specialist at 64, working for a major pharmaceutical manufacturer of plasma derivative products. I had done quality assurance for some years in my own business. I was a certified quality manager/certified quality auditor, so I knew what to look for wherever I went and whatever type of business it was. This would be to my detriment when the company decided to to sell to a company in Spain to get out from under a FDA action against the company for fairly major quality issues. When the company in Spain decided to purchase the company I was working with, I got laid off along with 400 others.
At 64, on unemployment and with no prospects of a job because of that title, I founded a very tiny and penniless nonprofit to assist physically challenged fiber artists with getting exposure and sales for their work and to assist them with professional development. I did this successfully on the side, always as a volunteer with the other volunteers for some 10 years. Shortly after I founded the nonprofit, I remembered that I had a certificate that would allow me to work with special needs children. I became a substitute for two different school districts, and I absolutely loved all the work I did in school. Life was good in those times. I had just enough to live on very modestly; spirit does not need a lot of money.
These were truly some of the happiest days in my life. When I was not at work with the children, I was providing assistance for the physically challenged artists with two other people – my paraplegic best friend, Barbara Williamson, who lived in Paradise, CA, the secretary of the nonprofit, and her caregiver, Rob, the treasurer, whose job was easiest of all since we had no money in the treasury. I had figured out how we could do a lot with nothing and so we did that for more than 10 years until we both suffered worse physical and mental challenges that made it difficult to continue that work.
We did write a book on the subject to get good closure. Last November, Barb and her caregiver had to escape with their lives from the horrible fire in Paradise that destroyed their home, the entire town and all of her art. I will never regret any of that work because she now has skills and knowledge to help her rebuild her life from what she learned during those years.
Most of all for me, there were the children. Some of the children I worked with were not only developmentally challenged; they had such major challenges as MS and childhood arthritis. There is something so special and beautiful about these children. If I had been married then and had an adequate home and finances to do it, I would have adopted as many of them as I could. Raising special needs children is no easy task nor a romantic one. Not only do they provide challenges throughout the days and nights; most of the time they will be in the care of the parents one way or the other for the remainder of their lives.
Special needs children often require bathroom assistance into and through their teen and even adult lives, as well as things like “failure-to-thrive” children, who must be helped to eat enough to help keep them alive. This is not a psychological issue; it is one that they are born with. I have had children I had to give enriched milk or other liquids to through a tube in their stomachs, and others who had to have a bucket accompany them to their lunch so they could throw up in it after eating a little. And then there is the physically reactive child. Some of them are runners, and will run off the playground if they can (and not even because they are unhappy, etc. but just because it is part of their makeup, and they are not running to a specific place, but just needing to run). And there are those who can deliver a huge punch; I was punched in the face and had my glasses broken, was bitten, had my hair pulled, was kicked and painfully pinched and slapped, pretty much all without warning. Some of the children are very strong for their sizes. If a child’s routine is broken in any way, or the child is unable to express his/her needs, you can expect that the child will react, sometimes violently.
But we become good at dealing with these issues, and most of us who work with them can see the beauty of the children and the wonder of their lives through all of the challenges. Sometimes their own parents cannot cope with them, or the parents do things that are not beneficial for the child such as over/under or irregularly medicating them or putting them into group homes when they become overwhelmed. It is one of those great societal issues where it is difficult to place blame, for anyone who has to deal with these issues day AND night every single day of the week without a break is going to have a true challenge.
As caregivers for special needs children, we are all referred to as mandated reporters, and it is our duty and legal obligation to report any type of abuse of any child. I honestly can’t tell you how many of those reports I filled out over the years for things I personally witnessed. And I can’t tell you how many of them were “shelved.” The schools in California at least are financed by children being in school, not when they are out sick or parents refuse to bring them to a specific school because of the behaviors of teachers or aides or others. I am pretty certain that most people reading this will understand the implications of this policy.
There are a lot of really wonderful and dedicated teachers, aides and others who work with special needs children. But there are also a lot of horrible ones, and I am not certain that situation will ever change in reality. There IS training available for how to work with such children and young people, but not all of those who work with them get that training or learn from it if they do get it. Most of what we learn to deal with well is learned from real-time experience along the way, and if a person’s heart is not in it, it will at best be mediocre.
At home, as I noted, parents are often stressed to the breaking point and there is no one generally to spell them or for them to talk to regularly – even support groups are very far and few between. The first sad thing too is that some children are labeled special needs because perhaps they are slow to learn to read or write, etc. Once they get such labels, they will have them through their entire lives. For me, that ensures that even the children who might otherwise have done well will just give up and not try to much.
I have long since realized that children grow at different rates, just as some walk really early, learn to use the potty really early, etc., and some take a long time. It is just the nature of life in this world. My daughter was potty trained when she barely started to sit up, and that was her own doing. She would put her tiny hands together and clap any time she was successful in her efforts. She could read well and talk well at age two, and she could memorize her storybooks too. My two sons were very different from that – slow to learn to do everything and slow to read. It is normal for children to progress at different rates.
One of the things that happens from the stress and other issues parents face is that special needs children are more often abandoned, abused, and even murdered than regular children. They are also very highly bullied. The problem however, is that the tallies on these crimes are all thrown in together with those of children who are not special needs, so as a result, no one knows the true figures. But some people who have studied and worked with the children have long thought that the figures are higher and it makes total sense. And if a special needs child ends up being institutionalized because of abuse or abandonment, there is little chance that the child will ever do better in this life. And the people (if parents) who do these things to special needs children, at least in the past, often did not get severe jail sentences if any at all. There used to be a young man who likely had Asperger’s, a high functioning level of autism, who wrote posts regularly about these issues. These young people can be and often are highly intelligent, but are unable to deal with socializing and interacting with others.
Even the best of parents with special needs childrens do not know all they need to do about what happens when their children grow up. Not all parents with older special needs children know about estate planning for the children. There are three very specific and important reasons that this needs to be addressed.
First is the fact that these children will need special physical and mental/emotional services all their lives, even the most proficient of them. This will involve very careful financial planning to ensure that the parent can provide such services.
Secondly, a special estate plan is the only way to ensure that the child can be provided for without having them become ineligible for government and private benefit programs.
And finally, if the parent is no longer alive or available, without such planning, the child can end up in an institution, or worse, can become homeless and at the mercy of every transient out there. I have actually witnessed such cases, and I am pretty certain that no parent would wish this on any child of theirs.
The best way for parents to plan for a special needs child is to set up a Special Needs Trust. In this instance, the parents appoint Trustees to manage the Trust for the child’s benefit. This person needs to be trustworthy, and someone who is capable mentally and emotionally, as well as financially to direct and manage the child’s care through the remainder of his/her life.
I am retired from working with the special needs children now since I was diagnosed with severe PTSD from heavy-duty traumas followed by cancer (cancer-free following surgery in 2016), but I still tutor privately, often as a volunteer these days with special needs or ESL (not always Spanish either) children and adults. I completed a degree later in 2016 in Criminal Justice with a minor in law, but could not work as a mentor/advocate for juvenile delinquents because of my age and the PTSD. I always keep trying to do what I can and I have been happy for whatever I have been able to contribute to the lives of special needs children as well as others with special challenges. It is not going to change what they go through overall, but it does help them for a moment in time and I am not sure what more any of us can do.